DHDDS Heroes

The amazing people who continue to support us.

Thanks to all those who continue to support DHDDS research with Fundraising challenges and events.

Here are a few of the faces that are helping us get one step closer to a treatment and cure for DHDDS mutations.

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Good luck to Freddie Tidbury (cousin to two children with DHDDS) who will be raising money by completing a triathlon in aid of Cure DHDDS shortly.

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Thank you to Sophie Clegg who undertook the National Three Peaks Challenge in aid of Cure DHDDS on 18th May 2024 raising £1,385.

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Thanks to London Scottish who allowed the Cure DHDDS team to shake their buckets at the match against Nottingham raising over £1,500.

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Thanks to Will Gore who ran the Royal Parks run raising over £1,200 for Cure DHDDS.

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Thanks to Zoe Dyer (Proud grandparent to two DHDDS children) who organised her own Fundraising gala in aid of Cure DHDDS raising £8,000.

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Thank you to fellow DHDDS parent Hedy Collins for raising $1000 for her fundraising walk in aid of Cure DHDDS

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Thank you to Susie Braam for her coffee morning in aid of Cure DHDDS raising over £400.

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Thanks to Zoe Manville for all the work she does for Cure DHDDS USA and for organising a Frances changed my life fundraiser that took place in partnership with playing for change raising over $100k for cure dhdds research and helping playing for change continue to inspire connection and education through music.

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Thanks to all those who took part in the 50km Fundraising walk from Windsor to Mortlake raising over £80,000 for Cure DHDDS.

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Thanks to fellow DHDDS mum Kida Fejzullahu for raising over £3200 through her Go fund me page.