DHDDS Heroes

The amazing people who continue to support us.

Thanks to all those who continue to support DHDDS research with Fundraising challenges and events.

Here are a few of the faces that are helping us get one step closer to a treatment and cure for DHDDS mutations.


Good luck to Freddie Tidbury (cousin to two children with DHDDS) who will be raising money by completing a triathlon in aid of Cure DHDDS shortly.


Thank you to Sophie Clegg who undertook the National Three Peaks Challenge in aid of Cure DHDDS on 18th May 2024 raising £1,385.


Thanks to London Scottish who allowed the Cure DHDDS team to shake their buckets at the match against Nottingham raising over £1,500.


Thanks to Will Gore who ran the Royal Parks run raising over £1,200 for Cure DHDDS.


Thanks to Zoe Dyer (Proud grandparent to two DHDDS children) who organised her own Fundraising gala in aid of Cure DHDDS raising £8,000.


Thank you to fellow DHDDS parent Hedy Collins for raising $1000 for her fundraising walk in aid of Cure DHDDS


Thank you to Susie Braam for her coffee morning in aid of Cure DHDDS raising over £400.


Thanks to Zoe Manville for all the work she does for Cure DHDDS USA and for organising a Frances changed my life fundraiser that took place in partnership with playing for change raising over $100k for cure dhdds research and helping playing for change continue to inspire connection and education through music.


Thanks to all those who took part in the 50km Fundraising walk from Windsor to Mortlake raising over £80,000 for Cure DHDDS.


Thanks to fellow DHDDS mum Kida Fejzullahu for raising over £3200 through her Go fund me page.