Welcome to Cure DHDDS a charity set up to raise awareness, support families and help drive research into the ultra-rare DHDDS gene mutations.
Cure DHDDS is a registered charity in England (Charity number 1202643)
If you or a loved one has been recently diagnosed with a DHDDS or NUS1 mutation please visit our private Facebook group Cure DHDDS and NUS1 community for support or advice.
Watch our short film to learn more...
